New study explores how families cope with feeding and talking challenges in SMA type 1

NCT ID NCT07596277

Not yet recruiting Knowledge-focused Sponsor: Guy's and St Thomas' NHS Foundation Trust Source: ClinicalTrials.gov ↗

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study will interview 15 parents or guardians of children with spinal muscular atrophy type 1 to learn about their daily challenges with feeding and communication. Even though newer treatments have improved survival, their impact on swallowing and speech is not well understood. The goal is to capture real-life experiences to guide better support and care.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to: If successful, this research could help doctors better support families and improve care for feeding and communication issues in SMA Type 1.
What could go wrong: This is a small, early-stage interview study with only 15 families, so findings may not apply to everyone. It does not test a new treatment.

This is an AI summary of the original study and may miss details. Read our disclaimer.

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Conditions

The condition(s) this trial relates to.

Communication Deglutition Disorders Language Speech Spinal Muscular Atrophies of Childhood spinal muscular atrophy, type 1

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

SPINAL MUSCULAR ATROPHY 1

Contacts and locations

Locations

GSTT Evelina Neurosciences

London, SE1 7EU, United Kingdom

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