Massive new study to map ATTR amyloidosis journeys in over 52,000 patients
NCT ID NCT06355934
First seen Nov 01, 2025 · Last updated May 22, 2026 · Updated 31 times
Summary
This study is observing over 52,000 people with ATTR amyloidosis to learn about their disease from diagnosis through treatment. Researchers will collect information from medical records to see how the disease progresses, what treatments are used, and how it affects quality of life. No new treatments are being tested; the goal is to better understand the disease in everyday medical practice.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Research Site
COMPLETEDEden Prairie, Minnesota, 55344, United States
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Research Site
RECRUITINGCalgary, Alberta, T2P 4K7, Canada
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Research Site
COMPLETEDBeijing, China
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Research Site
COMPLETEDChangsha, China
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Research Site
COMPLETEDChengdu, China
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Research Site
COMPLETEDGuangzhou, China
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Research Site
COMPLETEDWuhan, China
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Research Site
COMPLETEDHorsens, Denmark
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Research Site
COMPLETEDBerlin, Germany
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Research Site
COMPLETEDTokyo, Japan
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Research Site
RECRUITINGLisbon, Portugal
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Research Site
NOT_YET_RECRUITINGPorto, Portugal
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Research Site
COMPLETEDA Coruña, Spain
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Research Site
COMPLETEDBarcelona, Spain
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Research Site
COMPLETEDBilbao, Spain
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Research Site
COMPLETEDEl Palmar, Spain
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Research Site
COMPLETEDHuelva, Spain
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Research Site
COMPLETEDLas Palmas de Gran Canaria, Spain
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Research Site
COMPLETEDMadrid, Spain
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Research Site
COMPLETEDMajadahonda, Spain
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Research Site
COMPLETEDPalma de Mallorca, Spain
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Research Site
COMPLETEDSalamanca, Spain
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Research Site
COMPLETEDValencia, Spain
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Research Site
COMPLETEDSödertälje, Sweden
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Research Site
COMPLETEDUmeå, Sweden
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Research Site
COMPLETEDLondon, United Kingdom
Conditions
Explore the condition pages connected to this study.