Massive Real-World study launches to track ATTR amyloidosis journey
NCT ID NCT06355934
First seen Nov 01, 2025 · Last updated May 16, 2026 · Updated 30 times
Summary
This study will follow over 52,000 people with ATTR amyloidosis, a rare disease where abnormal protein builds up in organs. Researchers will look at medical records to see how the disease is diagnosed, what treatments people receive, and how their health changes over time. The goal is to better understand the disease and improve care, but no new treatments are being tested.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Research Site
COMPLETEDEden Prairie, Minnesota, 55344, United States
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Research Site
RECRUITINGCalgary, Alberta, T2P 4K7, Canada
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Research Site
COMPLETEDBeijing, China
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Research Site
COMPLETEDChangsha, China
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Research Site
COMPLETEDChengdu, China
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Research Site
COMPLETEDGuangzhou, China
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Research Site
COMPLETEDWuhan, China
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Research Site
COMPLETEDHorsens, Denmark
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Research Site
COMPLETEDBerlin, Germany
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Research Site
COMPLETEDTokyo, Japan
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Research Site
RECRUITINGLisbon, Portugal
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Research Site
NOT_YET_RECRUITINGPorto, Portugal
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Research Site
COMPLETEDA Coruña, Spain
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Research Site
COMPLETEDBarcelona, Spain
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Research Site
COMPLETEDBilbao, Spain
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Research Site
COMPLETEDEl Palmar, Spain
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Research Site
COMPLETEDHuelva, Spain
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Research Site
COMPLETEDLas Palmas de Gran Canaria, Spain
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Research Site
COMPLETEDMadrid, Spain
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Research Site
COMPLETEDMajadahonda, Spain
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Research Site
COMPLETEDPalma de Mallorca, Spain
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Research Site
COMPLETEDSalamanca, Spain
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Research Site
COMPLETEDValencia, Spain
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Research Site
COMPLETEDSödertälje, Sweden
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Research Site
COMPLETEDUmeå, Sweden
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Research Site
COMPLETEDLondon, United Kingdom
Conditions
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