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Rare disease patients share oral health struggles in new study

NCT ID NCT05070988

First seen Nov 01, 2025 · Last updated May 30, 2026 · Updated 34 times

Summary

This study looked at how rare diseases impact oral health and quality of life. Researchers interviewed 28 patients aged 6 and older at Necker Hospital in Paris. The goal was to understand their experiences and identify barriers to dental care, not to test a treatment.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Hôpital Necker-Enfants Malades

    Paris, 75015, France

Conditions

The condition(s) this trial relates to.

Rare Diseases

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.