Decade-Long quest to map the progression of a rare genetic disorder

NCT ID NCT00598351

Recruiting now Knowledge-focused Sponsor: National Institute of Neurological Disorders and Stroke (NINDS) Source: ClinicalTrials.gov ↗

Summary

This study aims to observe and understand how neurofibromatosis type 2 (NF2) develops over time. Researchers will follow 269 participants, aged 8 to 75, for up to ten years, tracking tumor growth and its effects on hearing, speech, and swallowing. The goal is to gather detailed information to help guide future treatments, not to test a new therapy.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

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Study contacts

Contact

Phone: •••-•••-•••• Email: •••••@•••••
Contact

Phone: •••-•••-•••• Email: •••••@•••••

Locations

National Institutes of Health Clinical Center
RECRUITING

Bethesda, Maryland, 20892, United States

Conditions

Explore the condition pages connected to this study.

NEUROFIBROMATOSIS