Decade-Long quest to map the progression of a rare genetic disorder
NCT ID NCT00598351
Summary
This study aims to observe and understand how neurofibromatosis type 2 (NF2) develops over time. Researchers will follow 269 participants, aged 8 to 75, for up to ten years, tracking tumor growth and its effects on hearing, speech, and swallowing. The goal is to gather detailed information to help guide future treatments, not to test a new therapy.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Conditions
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