New study aims to better measure pain in NF1 patients
NCT ID NCT02544022
First seen Nov 01, 2025 · Last updated May 19, 2026 · Updated 25 times
Summary
This study is working to improve questionnaires that measure pain, daily living, and physical function for people with neurofibromatosis type 1 (NF1) who have plexiform neurofibromas. Researchers will talk with patients and parents to refine existing tools, then test the updated versions. The goal is to create better ways to track how NF1 affects daily life in future clinical trials.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for NEUROFIBROMATOSIS 1 are added.
Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
Genom att skicka in godkänner du våra Användarvillkor
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
Children's Hospital of Philadelphia
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
Contact Email: •••••@•••••
-
Children's National Medical Center
COMPLETEDWashington D.C., District of Columbia, 20010, United States
-
Cincinnati Children's Hospital and Medical Center Institution
COMPLETEDCincinnati, Ohio, 45229-3039, United States
-
Johns Hopkins University
ACTIVE_NOT_RECRUITINGBaltimore, Maryland, 21287, United States
-
National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-••••
-
University of Chicago
ACTIVE_NOT_RECRUITINGChicago, Illinois, 60637, United States
Conditions
Explore the condition pages connected to this study.