Researchers seek Patients' help to build better pain surveys for rare tumor disorder
NCT ID NCT02544022
Summary
This study aims to create and test better questionnaires for people with neurofibromatosis 1 (NF1) who have painful plexiform tumors. Researchers are working with patients and parents to improve how pain and its impact on daily life are measured. The goal is to develop reliable tools that can be used in future clinical trials to see if new treatments are helping.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Children's Hospital of Philadelphia
RECRUITINGPhiladelphia, Pennsylvania, 19104, United States
Contact Email: •••••@•••••
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Children's National Medical Center
COMPLETEDWashington D.C., District of Columbia, 20010, United States
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Cincinnati Children's Hospital and Medical Center Institution
COMPLETEDCincinnati, Ohio, 45229-3039, United States
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Johns Hopkins University
ACTIVE_NOT_RECRUITINGBaltimore, Maryland, 21287, United States
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-••••
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University of Chicago
ACTIVE_NOT_RECRUITINGChicago, Illinois, 60637, United States
Conditions
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