10-Year study aims to unlock mysteries of rare genetic disorder
NCT ID NCT00924196
First seen Dec 02, 2025 · Last updated May 22, 2026 · Updated 18 times
Summary
This study follows 259 children and adults with Neurofibromatosis Type 1 (NF1) for up to 10 years. Researchers track tumors, quality of life, and other health changes to better understand how the disease progresses. The goal is to gather information that could help design better treatments in the future.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for PLEXIFORM NEUROFIBROMA are added.
Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
Genom att skicka in godkänner du våra Användarvillkor
Locations
-
National Institutes of Health Clinical Center
Bethesda, Maryland, 20892, United States
Conditions
Explore the condition pages connected to this study.