Egypt launches major study on rare genetic disorder NF1
NCT ID NCT07221331
First seen Nov 01, 2025 · Last updated May 20, 2026 · Updated 21 times
Summary
This study is a disease registry that collects information from medical records of 200 people in Egypt diagnosed with neurofibromatosis type 1 (NF1), a genetic condition that causes tumors on nerves. Researchers aim to understand how common NF1 is, how it progresses, and how it is managed in real-world settings. The study does not test any new treatment but will help doctors better recognize and care for NF1 patients.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Research Site
RECRUITINGAl Mansurah, Egypt
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Research Site
RECRUITINGAlexandria, Egypt
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Research Site
RECRUITINGAswān, Egypt
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Research Site
NOT_YET_RECRUITINGAsyut, Egypt
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Research Site
RECRUITINGCairo, Egypt
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Research Site
NOT_YET_RECRUITINGCairo, Egypt
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Research Site
NOT_YET_RECRUITINGSohag, Egypt
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Research Site
RECRUITINGTanta, Egypt
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Research Site
NOT_YET_RECRUITINGZagazig, Egypt
Conditions
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