Massive MS registry aims to unlock disease secrets
NCT ID NCT01018537
First seen Nov 14, 2025 · Last updated Jun 19, 2026 · Updated 39 times
Summary
This long-term study follows up to 50,000 people with multiple sclerosis to learn how the disease changes over time and what factors affect it. Participants fill out surveys twice a year online or by mail. No treatment or medication is given; the goal is to gather information for research only.
Disclaimer
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
UT Southwestern Medical Center
RECRUITINGDallas, Texas, 75390-8806, United States
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this registry could help researchers better understand how multiple sclerosis progresses and what factors influence it, potentially guiding future treatments.
What could go wrong
This is an observational registry, not a treatment trial. It collects data but does not test any intervention, so it cannot directly lead to a cure or therapy.
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.