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Can a personalized support program ease the burden of MSA?

NCT ID NCT04965922

Symptom relief Sponsor: University Hospital, Bordeaux Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study tested a personalized counseling and support program for 130 people with multiple system atrophy (MSA) and their caregivers. The program aimed to identify individual needs and improve daily life management. Researchers measured quality of life and depression symptoms to see if the program helped.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
personalized caregiver counseling and support intervention
What this could lead to
If successful, this approach could point toward better ways to support daily living and emotional well-being for families affected by MSA.
What could go wrong
This is a small, completed study without a control group, so results may not apply broadly. The intervention is behavioral, not a treatment for the disease itself.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

130 people

The number who actually took part.

Started

Jul 2021

Finished

Jul 2025

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Accepted

You do not need to have the condition being studied to take part.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Patients Inclusion Criteria : * Patients suffering from "possible" or "probable" MSA according to clinical consensus criteria * Living at home * Presence of at least one close person (family caregiver or not) in the entourage * Unified Multiple System Atrophy Rating Scale (UMSARS) IV ≤4 * Written informed consent * Patient covered by the national health system Caregivers Inclusion Criteria : * Age \> 18 * Able to answer to study scales and survey * Written informed consent Patients Exclusion Criteria: * Unified Multiple System Atrophy Rating Scale (UMSARS) IV \> 4 * Absence of at least one close person Caregivers Inclusion Criteria : \- Enable to answer to study scales and survey

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Conditions

The condition(s) this trial relates to.

multiple system atrophy neurodegenerative disease

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Multiple system atrophy

Contacts and locations

Locations

  • CHU Bordeaux

    Bordeaux, 33 076, France

More trials for these conditions

Other studies related to the condition(s) this trial covers.