Long-Term Well-Being of women with MRKH syndrome under study
NCT ID NCT05415540
First seen Nov 20, 2025 · Last updated Jun 22, 2026 · Updated 32 times
Summary
This study follows 25 women with MRKH syndrome, a condition where the uterus and upper vagina are underdeveloped, to see how their quality of life has changed 8 to 10 years after an initial assessment. Participants fill out questionnaires and take part in interviews about their social and professional lives. The goal is to understand the long-term emotional and practical impacts of the condition.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Necker Children's Hospital
Paris, 75015, France
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.