How do women with MRKH syndrome fare after a decade?

NCT ID NCT05415540

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study looks at how the quality of life changes over time for young women with MRKH syndrome, a condition where the uterus and upper vagina are underdeveloped. Researchers followed 25 women who took part in an earlier study, asking them to fill out questionnaires about their well-being and social life 8 to 10 years later. The goal is to understand the long-term impact of the condition, not to test a new treatment.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Necker Children's Hospital

    Paris, 75015, France

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