Study follows Women's lives a decade after rare diagnosis
NCT ID NCT05415540
Summary
This study followed 25 women with MRKH syndrome, a rare condition where the uterus and vagina are underdeveloped, to see how their quality of life and psychological well-being changed over 8-10 years. Researchers used questionnaires and interviews to understand their experiences with sexual health, desire for motherhood, and social life. The goal was to learn how to better support women with this condition over the long term.
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Contacts and locations
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Locations
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Necker Children's Hospital
Paris, 75015, France
Conditions
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