Giving a voice to people with intellectual disability: can a redesigned questionnaire make self-reporting truly accessible?
NCT ID NCT05857592
First seen Aug 07, 2026 · Last updated Aug 07, 2026
Summary
This study explores whether a standard self-report questionnaire about daily living skills can be understood and completed meaningfully by adults with mild intellectual disability (IQ 55-85). Researchers will first test the original questionnaire, then use feedback to create a more accessible version and see if participants understand it better. The goal is to develop a tool that lets people with intellectual disability share their own views more accurately, rather than relying only on caregivers.
What this could mean
Our plain-language read of the trial. This is informational only, not medical advice or a prediction.
- Active substance
- Adapted version of the ABAS-3 self-report questionnaire
- What this could lead to
- If successful, this could lead to more inclusive and accurate self-report tools for people with intellectual disabilities, improving their involvement in assessments and care decisions.
- What could go wrong
- This is a small, early-stage study (20 participants) focused on understanding and feasibility, not on proving clinical effectiveness. Results may not generalize to all people with intellectual disabilities.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Study facts
What this study's own registry entry says, in plain language.
- Phase
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Not a phased trial
Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.
- Participants
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20 people
The number who actually took part.
- Started
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Jul 2023
- Finished
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May 2024
- Lead sponsor
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Other sponsor
The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.
Who can take part
This study's own entry requirements. Only the study team can say for certain whether you qualify.
- Ages
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18 years and older
- Sex
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Anyone
- Healthy volunteers
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Not accepted
This study is not open to healthy volunteers. The entry requirements below say who it is open to.
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Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.
Inclusion Criteria: * Age 18 years or older * Last known Total Intelligence Quotient (TIQ) 55 - 85 * Receiving support from a care organization for persons with ID. * A care worker who knows the participant for at least a year and knows him well enough tot complete the informant version of the ABAS-3 is available. Exclusion Criteria: • Severe physical or sensory impairment limiting ability to participate.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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Koraal
Sittard, L, 6130 PC, Netherlands
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