Giving a voice to people with intellectual disability: can a redesigned questionnaire make self-reporting truly accessible?

NCT ID NCT05857592

First seen Aug 07, 2026 ยท Last updated Aug 07, 2026

Summary

This study explores whether a standard self-report questionnaire about daily living skills can be understood and completed meaningfully by adults with mild intellectual disability (IQ 55-85). Researchers will first test the original questionnaire, then use feedback to create a more accessible version and see if participants understand it better. The goal is to develop a tool that lets people with intellectual disability share their own views more accurately, rather than relying only on caregivers.

What this could mean

Our plain-language read of the trial. This is informational only โ€” not medical advice or a prediction.

Active substance
Adapted version of the ABAS-3 self-report questionnaire
What this could lead to
If successful, this could lead to more inclusive and accurate self-report tools for people with intellectual disabilities, improving their involvement in assessments and care decisions.
What could go wrong
This is a small, early-stage study (20 participants) focused on understanding and feasibility, not on proving clinical effectiveness. Results may not generalize to all people with intellectual disabilities.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • Koraal

    Sittard, L, 6130 PC, Netherlands

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