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What happens years after sarcoma? major study seeks answers

NCT ID NCT07148193

Knowledge-focused Sponsor: Technische Universität Dresden Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study aims to learn about the quality of life, medical care experiences, and unmet needs of people who have lived with sarcoma for at least five years. Researchers will survey 1,600 survivors in Germany and interview up to 60 of them in depth. The goal is to identify what support survivors still need and how care can be improved.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If successful, this study could reveal what long-term sarcoma survivors need most, helping doctors and policymakers improve follow-up care and support services.
What could go wrong
This is an observational study, not a treatment trial. It will not test any new drug or therapy, and results may not apply to survivors outside Germany.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 1,600 people

The number the study aims to enrol. It can still change while the study runs.

Started

Nov 2025

Expected to finish

Sep 2027

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Adults (≥18 years) diagnosed with a sarcoma at least five years prior to study participation, regardless of current disease status, who are treated or receive follow-up care in Germany.

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Diagnosis of sarcoma according to the International Classification of Diseases for Oncology (ICD-O) and World Health Organization (WHO) classification, including soft tissue sarcoma, bone sarcoma, and GIST * At least 5 years since initial sarcoma diagnosis * With or without active disease * Age ≥18 years at the time of study participation Exclusion Criteria: * Diagnosis of Desmoid tumors * Inability to complete a structured questionnaire (e.g., due to insufficient German language skills, cognitive impairment, dementia)

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Conditions

The condition(s) this trial relates to.

neoplasm sarcoma

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Medical care Quality of life (QOL) Sarcoma Survivorship

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    5 sites. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • Deutsche Sarkom-Stiftung

    RECRUITING

    Wölfersheim, Germany

  • NCT Heidelberg

    RECRUITING

    Heidelberg, Germany

  • Sarcoma Center Mannheim

    RECRUITING

    Mannheim, Germany

  • Technical University Dresden

    RECRUITING

    Dresden, Saxony, Germany

  • University Hospital Essen

    NOT_YET_RECRUITING

    Essen, Germany

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