What happens years after sarcoma? major study seeks answers
NCT ID NCT07148193
First seen Jan 03, 2026 · Last updated Jun 23, 2026 · Updated 24 times
Summary
This study aims to learn about the quality of life, medical care experiences, and unmet needs of people who have lived with sarcoma for at least five years. Researchers will survey 1,600 survivors in Germany and interview up to 60 of them in depth. The goal is to identify what support survivors still need and how care can be improved.
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Deutsche Sarkom-Stiftung
RECRUITINGWölfersheim, Germany
Contact
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NCT Heidelberg
RECRUITINGHeidelberg, Germany
Contact
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Sarcoma Center Mannheim
RECRUITINGMannheim, Germany
Contact
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Technical University Dresden
RECRUITINGDresden, Saxony, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
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University Hospital Essen
NOT_YET_RECRUITINGEssen, Germany
Contact
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this study could reveal what long-term sarcoma survivors need most, helping doctors and policymakers improve follow-up care and support services.
What could go wrong
This is an observational study, not a treatment trial. It will not test any new drug or therapy, and results may not apply to survivors outside Germany.
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.