Rare fat loss disorder under the microscope: 500 patients tracked for clues
NCT ID NCT03087253
First seen Mar 20, 2026 · Last updated May 21, 2026 · Updated 11 times
Summary
This study follows 500 people with lipodystrophy (a rare condition where the body loses fat tissue) for 5 to 7 years. Researchers want to find out how often diabetes and very high blood fats occur, and what health problems they cause. Participants complete yearly questionnaires and share medical records. The goal is to better understand these rare diseases and improve future care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Locations
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Federal University of Ceará
RECRUITINGFortaleza, Ceará, 60.430-370, Brazil
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Izmir Biomedicine and Genome Center
RECRUITINGIzmir, 35380, Turkey (Türkiye)
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National Institutes of Health
RECRUITINGBethesda, Maryland, 20892, United States
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University of Michigan
RECRUITINGAnn Arbor, Michigan, 48105, United States
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Conditions
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