500 patients with rare fat-loss disease tracked for years to uncover hidden risks

NCT ID NCT03087253

First seen Mar 20, 2026 · Last updated May 08, 2026 · Updated 10 times

Summary

This study follows about 500 people with lipodystrophy, a rare condition where the body loses fat tissue, leading to serious issues like diabetes and very high blood fats. Researchers will check participants yearly for 5 to 7 years to see how often these problems occur and what predicts them. The goal is to better understand the disease and improve future care.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Federal University of Ceará

    RECRUITING

    Fortaleza, Ceará, 60.430-370, Brazil

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Izmir Biomedicine and Genome Center

    RECRUITING

    Izmir, 35380, Turkey (Türkiye)

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Email: •••••@•••••

  • National Institutes of Health

    RECRUITING

    Bethesda, Maryland, 20892, United States

    Contact Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • University of Michigan

    RECRUITING

    Ann Arbor, Michigan, 48105, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

    Contact

Conditions

Explore the condition pages connected to this study.