Massive study seeks answers for families cursed by inherited cancer syndrome
NCT ID NCT01443468
Summary
This study aims to learn more about Li-Fraumeni syndrome (LFS), a rare genetic condition that greatly increases a person's risk of developing many types of cancer. Researchers will follow up to 5,000 individuals and families with LFS over many years, collecting health information, genetic data, and psychological surveys. The goal is to better understand which cancers occur, what other genes or environmental factors affect risk, and how the diagnosis impacts families, in order to improve future screening and management.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for NEOPLASMS are added.
Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
Genom att skicka in godkänner du våra Användarvillkor
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
National Cancer Institute - Shady Grove
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
-
National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-••••
Conditions
Explore the condition pages connected to this study.