New registry aims to unlock secrets of rare cancer syndrome
NCT ID NCT04982744
First seen Nov 20, 2025 · Last updated May 24, 2026 · Updated 33 times
Summary
This study is a registry that gathers medical, genetic, and quality-of-life information from people with Li-Fraumeni syndrome or similar conditions. The goal is to better understand how the disease develops and progresses over time. No treatments or experimental drugs are given. The study is currently open only to people living in Italy.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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IRCCS Istituto Ortopedico Rizzoli
ENROLLING_BY_INVITATIONBologna, Emilia-Romagna, 40136, Italy
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Irccs Istituto Ortopedico Rizzoli
RECRUITINGBologna, Emilia-Romagna, 40136, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.