Scientists build a massive database to unlock the secrets of a rare cancer syndrome
NCT ID NCT04982744
Summary
This study is creating a detailed registry to collect health information from people with Li-Fraumeni syndrome, a rare condition that increases cancer risk. The goal is to gather data on medical history, genetics, treatments, and quality of life to better understand the disease and guide future research. The registry is currently enrolling up to 200 participants who have been diagnosed with the syndrome, but is only open to people living in Italy at this time.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
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Genom att skicka in godkänner du våra Användarvillkor
Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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IRCCS Istituto Ortopedico Rizzoli
ENROLLING_BY_INVITATIONBologna, Emilia-Romagna, 40136, Italy
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Irccs Istituto Ortopedico Rizzoli
RECRUITINGBologna, Emilia-Romagna, 40136, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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