Researchers track vision loss in rare eye disease to better understand its impact
NCT ID NCT03295071
First seen Mar 03, 2026 · Last updated May 23, 2026 · Updated 8 times
Summary
This study looked at 44 people with Leber Hereditary Optic Neuropathy (LHON), a rare inherited eye disease that causes vision loss. Researchers reviewed medical records and asked participants about their vision and quality of life. The goal was to gather information on how the disease progresses and affects daily living, not to test a new treatment.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Alkek Eye Center
Houston, Texas, 77030, United States
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CHNO Les Quinze Vingts
Paris, 75012, France
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CHU d'Angers
Angers, 49100, France
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Doheny Eye Center UCLA Pasadena
Pasadena, California, 91105, United States
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Emory University Hospital
Atlanta, Georgia, 30322, United States
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Institut Catala de Retina
Barcelona, 08022, Spain
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Massachusetts Eye and Ear Infirmary
Boston, Massachusetts, 02114, United States
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Moorfields Eye Hospital
London, Greater London, EC1V 2PD, United Kingdom
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Ospedale Bellaria
Bologna, 40139, Italy
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Ospedale San Raffaele
Milan, 20132, Italy
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Wills Eye Institute
Philadelphia, Pennsylvania, 19107, United States
Conditions
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