Scientists track rare brain disease to unlock its secrets
NCT ID NCT03639285
First seen Jan 15, 2026 · Last updated May 20, 2026 · Updated 20 times
Summary
This study follows 600 people with leukodystrophy, a rare genetic brain disorder, to learn how the disease progresses and affects health. Researchers will use exams, brain scans, and genetic tests to track changes over time. The goal is to improve diagnosis and care, not to test a new treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Genom att skicka in godkänner du våra Användarvillkor
Contacts and locations
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Genom att skicka in godkänner du våra Användarvillkor
Study contacts
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Contact
Phone: •••-•••-••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Primary Children's Hospital
RECRUITINGSalt Lake City, Utah, 84113, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.