Scientists track leukodystrophy to unlock disease secrets
NCT ID NCT03639285
First seen Jan 15, 2026 · Last updated May 12, 2026 · Updated 19 times
Summary
This study follows 600 people with leukodystrophy, a rare genetic brain disorder, to learn how the disease progresses and affects health. Researchers will use medical exams, brain scans, and genetic testing to track changes over time. The goal is to improve diagnosis and care, not to test a new treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Primary Children's Hospital
RECRUITINGSalt Lake City, Utah, 84113, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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