Rare child disease under the microscope: researchers seek answers
NCT ID NCT07348263
First seen Jan 21, 2026 · Last updated May 23, 2026 · Updated 21 times
Summary
This study collects information from children diagnosed with juvenile-onset eosinophilic fasciitis, a rare disease that causes swelling and hardening of the skin and joints. Researchers aim to describe the symptoms, how the disease progresses, and how children respond to current treatments like steroids and methotrexate. The study does not test a new therapy but will help doctors better understand and manage this condition in the long term.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Alder Hey Children's Hospital
RECRUITINGLiverpool, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Astrid Lindgren Children's Hospital
RECRUITINGSolna, Stockholm County, 17164, Sweden
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Cerrahpasa Medical School, Istanbul University
NOT_YET_RECRUITINGIstanbul, Turkey (Türkiye)
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Children's Hospital Zagreb
RECRUITINGZagreb, 10000, Croatia
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Great North Children's Hospital, Newcastle Upon Tyne
NOT_YET_RECRUITINGNewcastle upon Tyne, United Kingdom
Contact Email: •••••@•••••
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Hamburger Zentrum für Kinder- und Jugendrheumatologie -
NOT_YET_RECRUITINGHamburg, Germany
Contact Email: •••••@•••••
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Hospital Sant Joan de Déu,
NOT_YET_RECRUITINGBarcelona, Spain
Contact Email: •••••@•••••
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IRCCS Giannina Gaslini,
RECRUITINGGenova, Italy
Contact Email: •••••@•••••
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Iuliu Hatieganu University of Medicine and Pharmacy
RECRUITINGCluj-Napoca, Romania
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Meyer Children's Hospital IRCCS
RECRUITINGFlorence, FI, 50139, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Ruth Rappaport Children's Hospital of Haifa
NOT_YET_RECRUITINGHaifa, Israel
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SUNY Upstate Pediatric Rheumatology
RECRUITINGSyracuse, New York, 13210, United States
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University Children's Hospital
NOT_YET_RECRUITINGLjubljana, Slovenia
Contact Email: •••••@•••••
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University of Alabama at Birmingham
RECRUITINGBirmingham, Alabama, 35294, United States
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Università di Udine
NOT_YET_RECRUITINGUdine, Italy
Contact Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.