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Rare childhood disease under the microscope: new study aims to unlock better care

NCT ID NCT07348263

Knowledge-focused Sponsor: Meyer Children's Hospital IRCCS Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now This study
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study is observing up to 20 children diagnosed with juvenile eosinophilic fasciitis, a rare connective tissue disease. Researchers will track symptoms, lab results, and treatments over time to better understand the condition and improve future care. No new drugs or procedures are being tested.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If successful, this study could provide clearer guidelines for diagnosing and treating juvenile eosinophilic fasciitis, improving care for affected children.
What could go wrong
This is an observational study with only 20 participants, so findings may not apply to all patients. It does not test a new treatment, so no direct benefit is guaranteed.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

About 20 people

The number the study aims to enrol. It can still change while the study runs.

Started

May 2025

Expected to finish

May 2027

An estimate. End dates often move.

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

The study will include patients diagnosed with eosinophilic fasciitis before \<18 years of age, separated into two different populations: Patients who received a diagnosis of JEF based on deep fascial biopsy features. Patients who received a diagnosis of JEF based on typical MRI findings but without deep fascial biopsy. Patients with localized or systemic scleroderma who underwent deep fascial biopsy, in a 1:1 ratio with patients with juvenile eosinophilic fasciitis will be enrolled as a comparison group

Ages

Up to 18 years

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion criterai: All patients diagnosed from 2000 to 31/12/2026 * minimum follow-up 6 months * Age \<18 years at diagnosis; * All patients whose informed consent is collected in accordance with current local legislation will also be considered enrollable. Exclusion Criteria: * Age ≥18 years at diagnosis; * Unwilling to participate into the study; * A follow-up period \< 6 months.

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Conditions

The condition(s) this trial relates to.

eosinophilic fasciitis Juvenile-onset scleroderma

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Eosinophilic fasciitis

How to take part

Only the study team decides who joins. These are the ways to reach them.

  1. The places running it

    15 sites in 11 countries. The list below names each one and where it is.

  2. The official record

    ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.

    Open the record ↗

  3. A doctor treating you

    A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.

Contacts and locations

Locations

  • Alder Hey Children's Hospital

    RECRUITING

    Liverpool, United Kingdom

  • Astrid Lindgren Children's Hospital

    RECRUITING

    Solna, Stockholm County, 17164, Sweden

  • Cerrahpasa Medical School, Istanbul University

    NOT_YET_RECRUITING

    Istanbul, Turkey (Türkiye)

  • Children's Hospital Zagreb

    RECRUITING

    Zagreb, 10000, Croatia

  • Great North Children's Hospital, Newcastle Upon Tyne

    NOT_YET_RECRUITING

    Newcastle upon Tyne, United Kingdom

  • Hamburger Zentrum für Kinder- und Jugendrheumatologie -

    NOT_YET_RECRUITING

    Hamburg, Germany

  • Hospital Sant Joan de Déu,

    NOT_YET_RECRUITING

    Barcelona, Spain

  • IRCCS Giannina Gaslini,

    RECRUITING

    Genova, Italy

  • Iuliu Hatieganu University of Medicine and Pharmacy

    RECRUITING

    Cluj-Napoca, Romania

  • Meyer Children's Hospital IRCCS

    RECRUITING

    Florence, FI, 50139, Italy

  • Ruth Rappaport Children's Hospital of Haifa

    NOT_YET_RECRUITING

    Haifa, Israel

  • SUNY Upstate Pediatric Rheumatology

    RECRUITING

    Syracuse, New York, 13210, United States

  • University Children's Hospital

    NOT_YET_RECRUITING

    Ljubljana, Slovenia

  • University of Alabama at Birmingham

    RECRUITING

    Birmingham, Alabama, 35294, United States

  • Università di Udine

    NOT_YET_RECRUITING

    Udine, Italy