Rare child disease study seeks answers to improve diagnosis and care

NCT ID NCT07348263

First seen Jan 21, 2026 · Last updated May 16, 2026 · Updated 20 times

Summary

This study aims to learn more about eosinophilic fasciitis, a rare connective tissue disease, in children. Researchers will collect information from up to 20 children diagnosed before age 18 to describe symptoms, how the disease progresses, and how it responds to current treatments. The goal is to improve diagnosis and long-term care for these young patients.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Alder Hey Children's Hospital

    RECRUITING

    Liverpool, United Kingdom

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Astrid Lindgren Children's Hospital

    RECRUITING

    Solna, Stockholm County, 17164, Sweden

  • Cerrahpasa Medical School, Istanbul University

    NOT_YET_RECRUITING

    Istanbul, Turkey (Türkiye)

  • Children's Hospital Zagreb

    RECRUITING

    Zagreb, 10000, Croatia

  • Great North Children's Hospital, Newcastle Upon Tyne

    NOT_YET_RECRUITING

    Newcastle upon Tyne, United Kingdom

    Contact Email: •••••@•••••

  • Hamburger Zentrum für Kinder- und Jugendrheumatologie -

    NOT_YET_RECRUITING

    Hamburg, Germany

    Contact Email: •••••@•••••

  • Hospital Sant Joan de Déu,

    NOT_YET_RECRUITING

    Barcelona, Spain

    Contact Email: •••••@•••••

  • IRCCS Giannina Gaslini,

    RECRUITING

    Genova, Italy

    Contact Email: •••••@•••••

  • Iuliu Hatieganu University of Medicine and Pharmacy

    RECRUITING

    Cluj-Napoca, Romania

  • Meyer Children's Hospital IRCCS

    RECRUITING

    Florence, FI, 50139, Italy

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Ruth Rappaport Children's Hospital of Haifa

    NOT_YET_RECRUITING

    Haifa, Israel

  • SUNY Upstate Pediatric Rheumatology

    RECRUITING

    Syracuse, New York, 13210, United States

  • University Children's Hospital

    NOT_YET_RECRUITING

    Ljubljana, Slovenia

    Contact Email: •••••@•••••

  • University of Alabama at Birmingham

    RECRUITING

    Birmingham, Alabama, 35294, United States

  • Università di Udine

    NOT_YET_RECRUITING

    Udine, Italy

    Contact Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.