Global hunt for answers on rare childhood muscle disease
NCT ID NCT07348263
Summary
This international study aims to better understand a rare childhood condition called juvenile eosinophilic fasciitis, which causes painful muscle inflammation. Researchers will observe 20 children diagnosed since 2000 to document their symptoms, track how they respond to current treatments, and learn about their long-term health and quality of life. The goal is to gather essential knowledge to improve future care for this poorly understood disease.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Alder Hey Children's Hospital
RECRUITINGLiverpool, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Astrid Lindgren Children's Hospital
RECRUITINGSolna, Stockholm County, 17164, Sweden
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Cerrahpasa Medical School, Istanbul University
NOT_YET_RECRUITINGIstanbul, Turkey (Türkiye)
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Children's Hospital Zagreb
RECRUITINGZagreb, 10000, Croatia
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Great North Children's Hospital, Newcastle Upon Tyne
NOT_YET_RECRUITINGNewcastle upon Tyne, United Kingdom
Contact Email: •••••@•••••
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Hamburger Zentrum für Kinder- und Jugendrheumatologie -
NOT_YET_RECRUITINGHamburg, Germany
Contact Email: •••••@•••••
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Hospital Sant Joan de Déu,
NOT_YET_RECRUITINGBarcelona, Spain
Contact Email: •••••@•••••
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IRCCS Giannina Gaslini,
RECRUITINGGenova, Italy
Contact Email: •••••@•••••
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Iuliu Hatieganu University of Medicine and Pharmacy
RECRUITINGCluj-Napoca, Romania
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Meyer Children's Hospital IRCCS
RECRUITINGFlorence, FI, 50139, Italy
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Ruth Rappaport Children's Hospital of Haifa
NOT_YET_RECRUITINGHaifa, Israel
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SUNY Upstate Pediatric Rheumatology
RECRUITINGSyracuse, New York, 13210, United States
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University Children's Hospital
NOT_YET_RECRUITINGLjubljana, Slovenia
Contact Email: •••••@•••••
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University of Alabama at Birmingham
RECRUITINGBirmingham, Alabama, 35294, United States
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Università di Udine
NOT_YET_RECRUITINGUdine, Italy
Contact Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.