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New tool aims to give voice to childhood cancer Survivors' Long-Term symptoms

NCT ID NCT04050072

First seen Nov 01, 2025 · Last updated Jun 19, 2026 · Updated 30 times

Summary

This study is developing a patient-reported survey to better capture symptoms in adults who survived childhood cancer. Researchers will work with 837 survivors to identify which symptoms matter most and create a validated tool. The goal is to improve long-term follow-up care by making symptom assessment more accurate and useful for clinical decisions.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • St. Jude Children's Research Hospital

    Memphis, Tennessee, 38105, United States

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

Patient-reported outcome survey

What this could lead to

If successful, this could give doctors a reliable way to track symptoms in childhood cancer survivors, leading to better long-term care and quality of life.

What could go wrong

This is an observational study focused on developing a measurement tool, not testing a treatment. It may not directly improve health outcomes, and the tool may need further validation before widespread use.

Conditions

The condition(s) this trial relates to.

cancer neoplasm

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.