New tool aims to give voice to childhood cancer Survivors' Long-Term symptoms

NCT ID NCT04050072

Ongoing Knowledge-focused Sponsor: St. Jude Children's Research Hospital Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study is developing a patient-reported survey to better capture symptoms in adults who survived childhood cancer. Researchers will work with 837 survivors to identify which symptoms matter most and create a validated tool. The goal is to improve long-term follow-up care by making symptom assessment more accurate and useful for clinical decisions.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance: Patient-reported outcome survey
What this could lead to: If successful, this could give doctors a reliable way to track symptoms in childhood cancer survivors, leading to better long-term care and quality of life.
What could go wrong: This is an observational study focused on developing a measurement tool, not testing a treatment. It may not directly improve health outcomes, and the tool may need further validation before widespread use.

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Conditions

The condition(s) this trial relates to.

cancer childhood malignant neoplasm neoplasm

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

CANCER SURVIVORSHIP

Contacts and locations

Locations

St. Jude Children's Research Hospital

Memphis, Tennessee, 38105, United States

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