New tool aims to give voice to childhood cancer Survivors' Long-Term symptoms
NCT ID NCT04050072
First seen Nov 01, 2025 · Last updated Jun 19, 2026 · Updated 30 times
Summary
This study is developing a patient-reported survey to better capture symptoms in adults who survived childhood cancer. Researchers will work with 837 survivors to identify which symptoms matter most and create a validated tool. The goal is to improve long-term follow-up care by making symptom assessment more accurate and useful for clinical decisions.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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St. Jude Children's Research Hospital
Memphis, Tennessee, 38105, United States
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
Active substance
Patient-reported outcome survey
What this could lead to
If successful, this could give doctors a reliable way to track symptoms in childhood cancer survivors, leading to better long-term care and quality of life.
What could go wrong
This is an observational study focused on developing a measurement tool, not testing a treatment. It may not directly improve health outcomes, and the tool may need further validation before widespread use.
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.