HAE patients and caregivers share real-world struggles in new survey
NCT ID NCT06806618
First seen May 05, 2026 · Last updated May 11, 2026 · Updated 1 time
Summary
This completed French survey studied the burden of on-demand treatment for hereditary angioedema (HAE) attacks from the perspective of 300 patients and their caregivers. It collected information on attack frequency, severity, treatment delays, and impacts on quality of life, social life, and finances. The goal was to better understand why some patients delay or skip injectable treatments.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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CHU Grenoble Alpes
Grenoble, France
Conditions
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