HAE patients and caregivers share real-world treatment struggles in new survey
NCT ID NCT06806618
First seen May 05, 2026 · Last updated May 05, 2026
Summary
This completed French survey studied 300 people with hereditary angioedema (HAE) and their caregivers. It asked about attack frequency, severity, treatment delays, and how HAE affects daily life and finances. The goal was to understand the real-world burden of managing HAE attacks from both the patient and caregiver perspective.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Locations
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CHU Grenoble Alpes
Grenoble, France
Conditions
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