Study lays groundwork for future LGMD treatments
NCT ID NCT03981289
First seen Feb 27, 2026 · Last updated May 20, 2026 · Updated 15 times
Summary
This study involved 116 people with Limb Girdle Muscular Dystrophy (LGMD), a group of rare genetic disorders causing progressive shoulder and hip muscle weakness. Researchers measured changes in mobility, muscle function, breathing, and daily activities over time. The goal was to identify the best tests to use in future clinical trials for new LGMD treatments.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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John Walton Muscular Dystrophy Research Centre (Newcastle Upon Tyne)
Newcastle, United Kingdom
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Kennedy Krieger Institute
Baltimore, Maryland, 21205, United States
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Nationwide Children's Hospital
Columbus, Ohio, 43205, United States
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The University of Colorado Anschutz Medical Campus
Aurora, Colorado, 80045, United States
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University of California Irvine
Irvine, California, 92697, United States
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University of Iowa
Iowa City, Iowa, 52242, United States
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University of Kansas Medical Center
Kansas City, Kansas, 66160, United States
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University of Minnesota
Minneapolis, Minnesota, 55455, United States
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Virginia Commonwealth University
Richmond, Virginia, 23298, United States
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Washington University School of Medicine
St Louis, Missouri, 63110, United States
Conditions
Explore the condition pages connected to this study.