New study maps key tests for LGMD to speed up drug development

NCT ID NCT03981289

Completed Knowledge-focused Sponsor: Virginia Commonwealth University Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study involved 116 people with Limb Girdle Muscular Dystrophy (LGMD), a group of rare muscle-weakening disorders. Researchers measured how well participants could walk, move their arms, and breathe, and asked about their daily activities and overall health. The goal was to identify the best tests to track disease progression, which will help design future clinical trials for new treatments.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for LIMB GIRDLE MUSCULAR DYSTROPHY are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Conditions

The condition(s) this trial relates to.

autosomal dominant limb-girdle muscular dystrophy type 1D (DNAJB6) limb-girdle muscular dystrophy muscular dystrophy

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

LIMB GIRDLE MUSCULAR DYSTROPHY MUSCULAR DYSTROPHIES

Contacts and locations

Locations

John Walton Muscular Dystrophy Research Centre (Newcastle Upon Tyne)

Newcastle, United Kingdom
Kennedy Krieger Institute

Baltimore, Maryland, 21205, United States
Nationwide Children's Hospital

Columbus, Ohio, 43205, United States
The University of Colorado Anschutz Medical Campus

Aurora, Colorado, 80045, United States
University of California Irvine

Irvine, California, 92697, United States
University of Iowa

Iowa City, Iowa, 52242, United States
University of Kansas Medical Center

Kansas City, Kansas, 66160, United States
University of Minnesota

Minneapolis, Minnesota, 55455, United States
Virginia Commonwealth University

Richmond, Virginia, 23298, United States
Washington University School of Medicine

St Louis, Missouri, 63110, United States

More trials for these conditions

Other studies related to the condition(s) this trial covers.