Study explores how genetic risk info shapes BRCA Carriers' health choices
NCT ID NCT03396341
First seen Feb 18, 2026 · Last updated Jun 22, 2026 · Updated 16 times
Summary
This study looks at how women with BRCA1 or BRCA2 gene mutations respond to learning about additional genetic risk factors. Researchers will follow about 800 women who have not had breast cancer, asking them to complete questionnaires and provide saliva or cheek swab samples. The goal is to see how this extra genetic information affects their decisions about preventive surgeries or cancer screening.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-••••
Locations
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Abramson Cancer Center at University of Pennsylvania Medical Center (Data Collection Only)
RECRUITINGPhiladelphia, Pennsylvania, 19104-4283, United States
Contact
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Dana Farber Cancer Institute (Data Collection Only)
RECRUITINGBoston, Massachusetts, 02115, United States
Contact Phone: •••-•••-••••
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Memorial Sloan Kettering Cancer Center
RECRUITINGNew York, New York, 10065, United States
Contact Phone: •••-•••-••••
Contact
Contact Phone: •••-•••-••••
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Memorial Sloan Kettering Commack
RECRUITINGCommack, New York, 11725, United States
Contact Phone: •••-•••-••••
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Memorial Sloan Kettering Nassau
RECRUITINGUniondale, New York, 11553, United States
Contact Phone: •••-•••-••••
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Memorial Sloan Kettering Westchester
RECRUITINGHarrison, New York, 10604, United States
Contact Phone: •••-•••-••••
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Memorial Sloan-Kettering at Basking Ridge
RECRUITINGBasking Ridge, New Jersey, 07920, United States
Contact Phone: •••-•••-••••
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this study could help doctors better understand how genetic risk information influences women's choices about breast cancer prevention, potentially improving counseling and decision-making support.
What could go wrong
This is an observational study, not a treatment trial, so it won't directly improve health outcomes. Results may not apply to non-English speakers or women under 25.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.