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Gene therapy breakthrough for rare childhood epilepsy?

NCT ID NCT06283212

First seen Jan 05, 2026 · Last updated May 24, 2026 · Updated 18 times

Summary

This study tests a new gene therapy called ETX101 in 5 children with Dravet syndrome, a severe form of epilepsy. The treatment aims to reduce seizures and improve development by delivering a working gene to brain cells. The study is early-stage (Phase 1/2) and focuses on safety, but also measures how well it controls the disease.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Great Ormond Street Hospital

    London, WC1N3JH, United Kingdom

  • Queen Elizabeth Hospital

    Glasgow, G51 4TF, United Kingdom

  • Sheffield Children's Hospital

    Sheffield, S10 2TH, United Kingdom

Conditions

Explore the condition pages connected to this study.