New study aims to speed up FSHD drug trials
NCT ID NCT03458832
First seen Apr 23, 2026 · Last updated May 22, 2026 · Updated 5 times
Summary
This study is not testing a treatment but is working to make future drug trials for facioscapulohumeral muscular dystrophy (FSHD) faster and more effective. Researchers are testing two new measurement tools and fine-tuning who can join future studies. About 324 adults with FSHD from 14 international sites will take part over 24 months.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Centro Clinico NeMO
Milan, 20162, Italy
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Chu De Nice
Nice, 06001, France
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Institut de Myologie
Paris, 75013, France
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Kennedy Krieger Institute
Baltimore, Maryland, 21205, United States
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Ludwig-Maximilians-Universität München
München, 80336, Germany
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Radboud Unviersity
Nijmegen, 6525 XZ, Netherlands
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The Ohio State University
Columbus, Ohio, 43210, United States
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University of California Los Angeles
Los Angeles, California, 90095, United States
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University of College London - Queens Square
London, WC1N 3BG, United Kingdom
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University of Kansas Medical Center
Kansas City, Kansas, 66160, United States
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University of Rochester Medical Center
Rochester, New York, 14642, United States
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University of Utah
Salt Lake City, Utah, 84132, United States
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University of Washington
Seattle, Washington, 98195, United States
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Virginia Commonwealth University
Richmond, Virginia, 23298, United States
Conditions
Explore the condition pages connected to this study.