FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Clinical trials for FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY explained in plain language.
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New hope for FSHD: phase 3 trial of AOC 1020 begins
Disease control Recruiting nowThis study tests an experimental drug called AOC 1020 for facioscapulohumeral muscular dystrophy (FSHD), a genetic condition that causes progressive muscle weakness. About 200 adults with a confirmed FSHD diagnosis who can still walk will receive either the drug or a placebo by I…
Matched conditions: FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Phase: PHASE3 • Sponsor: Avidity Biosciences, Inc. • Aim: Disease control
Last updated May 26, 2026 03:35 UTC
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New gene therapy trial hopes to silence FSHD at its source
Disease control Recruiting nowThis early-stage trial tests a single-dose gene therapy called EPI-321 in 12 adults with FSHD type 1, a genetic muscle disease. The therapy aims to turn off the faulty gene that causes muscle damage. Researchers will monitor safety and look for early signs that the treatment is w…
Matched conditions: FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Phase: PHASE1, PHASE2 • Sponsor: Epicrispr Biotechnologies, Inc. • Aim: Disease control
Last updated May 26, 2026 03:31 UTC
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New study aims to replace painful muscle biopsies with simple blood and urine tests
Knowledge-focused Recruiting nowThis study is looking for easier ways to track muscle diseases like muscular dystrophy. Instead of taking small pieces of muscle (biopsies), researchers want to see if blood and urine samples, plus painless ultrasound and electrical tests on arms and legs, can give the same infor…
Matched conditions: FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Sponsor: Massachusetts General Hospital • Aim: Knowledge-focused
Last updated May 22, 2026 13:56 UTC
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Join the fight: new registry links muscle disease patients with scientists
Knowledge-focused Recruiting nowThis study creates a national registry for people with myotonic dystrophy (DM) or facioscapulohumeral muscular dystrophy (FSHD) and their family members. The goal is to connect patients with researchers to speed up understanding of these inherited muscle-weakening diseases. Parti…
Matched conditions: FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Sponsor: University of Rochester • Aim: Knowledge-focused
Last updated May 22, 2026 13:51 UTC
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New registry aims to unlock FSHD mysteries through patient data
Knowledge-focused Recruiting nowThis study creates a registry for people with facioscapulohumeral muscular dystrophy (FSHD) to share their health experiences and data. Up to 5,000 participants in the U.S. will provide information on symptoms, progression, and quality of life. The goal is to help researchers bet…
Matched conditions: FACIOSCAPULOHUMERAL MUSCULAR DYSTROPHY
Sponsor: FSHD Society • Aim: Knowledge-focused
Last updated May 19, 2026 11:47 UTC