New tool aims to ease stress for parents facing baby's heart defect
NCT ID NCT04437069
First seen Feb 22, 2026 · Last updated Jun 13, 2026 · Updated 13 times
Summary
This study looks at whether a web-based decision aid can help parents of unborn or newborn babies with life-threatening congenital heart disease make informed choices and feel less stressed. About 135 parents will be randomly assigned to use the decision aid alone or with an extra values-clarification exercise, and their stress levels will be measured three months later. The goal is to improve family-centered care and shared decision-making in a very difficult situation.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Primary Children's Hospital Fetal and Pediatric Cardiology Clinics or Cardiac or Neonatal Intensive Care Units
Salt Lake City, Utah, 84108, United States
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University of Utah
Salt Lake City, Utah, 84108, United States
Conditions
The condition(s) this trial relates to.
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The condition terms exactly as the trial's registrant entered them.