Massive european effort to crack the code of rare amyloidosis
NCT ID NCT06205953
First seen Apr 18, 2026 · Last updated May 24, 2026 · Updated 12 times
Summary
This study is creating a large European registry of 400 newly diagnosed AL amyloidosis patients. Researchers will collect blood and tissue samples to study the disease at a molecular level, aiming to improve diagnosis and predict outcomes. The goal is to better understand the disease, not to test a new treatment.
Disclaimer
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Fondazione IRCCS Policlinico San Matteo, Pavia, Viale Golgi 19, 27100
RECRUITINGPavia, Italy
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Instituto de Investigación Sanitaria de Navarra (IdiSNA) C. de Irunlarrea, 3, 31008 Pamplona, Navarra
RECRUITINGPamplona, Spain
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Medical Department, Amyloidosis Center, University Hospital, Im Neuenheimer Feld 672
RECRUITINGHeidelberg, Germany
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UMC Utrecht, dept Hematology, Amyloid Expertise Center, Utrecht, Heidelberglaan
RECRUITINGUtrecht, Netherlands
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Universidad de la Republica Hospital de Clinicas "Dr Manuel Quintela"
RECRUITINGMontevideo, Uruguay
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact
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University of Applied Sciences and Arts Northwestern Switzerland, Institute of Medical Engineering and Medical Informatics
ACTIVE_NOT_RECRUITINGMuttenz, Switzerland
Conditions
Explore the condition pages connected to this study.