Massive european study maps rare Disease's natural course
NCT ID NCT02069509
First seen Nov 01, 2025 · Last updated May 25, 2026 · Updated 30 times
Summary
This study followed 1,200 people with Friedreich's ataxia across Europe to understand how the disease progresses naturally. Researchers collected clinical data and blood samples to develop better ways to measure changes over time. The goal is to help design future clinical trials and improve patient care.
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This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Bambino Gesù Children's Hospital, Department of Neurosciences
Roma, 00146, Italy
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Fondazione IRCCS Istituto Neurologico Carlo Besta
Milan, 20133, Italy
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Hospital Sant Joan de Déu, Servicio de Neurología
Barcelona, 08950, Spain
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Hospital Universitario La Paz, Servicio de Neurologia
Madrid, 28046, Spain
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Hôpital Pitié Salpêtrière, Bâtiment ICM
Paris, 75013, France
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Hôpital de Hautepierre, Service de Neurologie
Strasbourg, 67098, France
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Medical University Innsbruck, Department of Neurology
Innsbruck, 6020, Austria
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Motol University Hospital, Centre for Hereditary Ataxias
Prague, 150 06, Czechia
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National and Kapodistrian University of Athens, Neurogenetics Unit
Athens, 11528, Greece
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Tallaght University Hospital, Department of Neurology
Dublin, D24 TP66, Ireland
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University College of London, Ataxia Centre, National Hospital for Neurology and Neurosurgery
London, WC1N 3 BG, United Kingdom
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University Hospital Aachen, Dept. of Neurology
Aachen, 52074, Germany
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University Hospital Bonn, Dept. of Neurology
Bonn, 53105, Germany
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University of Munich, Dept. of Neurology, Friedrich-Baur-Institut
Munich, 80336, Germany
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University of Tübingen, Dept. of Neurodegenerative Diseases, Hertie-Institute for Clinical Brain Research
Tübingen, 72076, Germany
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Université Libre de Bruxelles, Hôpital Erasme, Dpt of Neurology
Brussels, 1070, Belgium
Conditions
Explore the condition pages connected to this study.