500 kids with muscular dystrophy to be tracked in major new study
NCT ID NCT07511920
First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 2 times
Summary
This study will follow 500 boys aged 1 to 18 with Duchenne or Becker muscular dystrophy for several years. Researchers will track their muscle function, body composition, lab tests, and heart and lung imaging to map how the disease changes over time. The goal is to create a model that predicts individual disease progression, which could help personalize care and future treatments.
What this could mean
Our plain-language read of the trial. This is informational only, not medical advice or a prediction.
- What this could lead to
- If successful, this study could help doctors better predict how the disease will progress in individual children and guide future treatment plans.
- What could go wrong
- This is an observational study, not a treatment trial. It will not directly improve symptoms or provide a cure. Results may take years to influence care.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Study facts
What this study's own registry entry says, in plain language.
- Participants
-
About 500 people
The number the study aims to enrol. It can still change while the study runs.
- Expected to start
-
Apr 2026
An estimate. Start dates often move.
- Expected to finish
-
Dec 2028
An estimate. End dates often move.
- Lead sponsor
-
Other sponsor
The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.
Who can take part
This study's own entry requirements. Only the study team can say for certain whether you qualify.
Who is studied
This is a multicenter observational natural history study of male children and adolescents with genetically confirmed Duchenne or Becker Muscular Dystrophy. Participants will be followed longitudinally to document the natural progression of muscle weakness, functional decline, and associated comorbidities. The study population includes individuals across a range of disease severity and ages, from early childhood to late adolescence.
- Ages
-
1 year to 18 years
- Sex
-
Male participants only
Show the full entry requirements Hide the full entry requirements
Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.
Inclusion Criteria: * Male participants with genetically confirmed diagnosis of Duchenne Muscular Dystrophy (DMD) or Becker Muscular Dystrophy (BMD) * Age range: 1 to 18 years old (adjust to your actual age limit) * Ability to complete study assessments and follow-up visits * Participants or legal guardians provide written informed consent Exclusion Criteria: * Participants with other neuromuscular disorders that may confound natural history data * Participation in another interventional clinical trial that could affect disease progression * Severe comorbidities that prevent completion of study assessments * Inability to provide informed consent or comply with study procedures
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for Muscular dystrophy are added.
Genom att skicka in godkänner du våra Användarvillkor
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
How to take part
Only the study team decides who joins. These are the ways to reach them.
-
The places running it
1 site. The list below names each one and where it is.
-
The official record
ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.
-
A doctor treating you
A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.
Contacts and locations
Locations
-
West China Second University Hospital, Sichuan University
Chengdu, China
More trials for these conditions
Other studies related to the condition(s) this trial covers.
- Can a daily supplement ease the toll of duchenne muscular dystrophy?
- Can tracking muscle changes unlock better duchenne treatments?
- Robotic arm could help people with paralysis regain independence at home
- New study aims to sharpen tools for tracking becker muscular dystrophy
- New drug could help boys with duchenne walk and move longer
- Could a common ED drug and cycling help kids with duchenne?