New study tracks how dravet syndrome changes over time in kids
NCT ID NCT07251673
First seen Dec 10, 2025 · Last updated May 21, 2026 · Updated 25 times
Summary
This study follows 50 children and young adults (ages 6 months to 21 years) with Dravet syndrome caused by SCN1A gene mutations. Researchers will measure changes in thinking, movement, and daily skills over 4 years using standard tests. They will also look for blood markers that may relate to disease severity. The goal is to better understand how the condition progresses, not to test a new treatment.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Robert Debré Hospital
RECRUITINGParis, Ap-hp / DRCI, 75019, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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