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Spain launches massive DM1 registry to unlock disease secrets

NCT ID NCT07385443

First seen Feb 04, 2026 · Last updated May 19, 2026 · Updated 15 times

Summary

This study aims to create a comprehensive national registry for Myotonic Dystrophy Type 1 (DM1) in Spain, collecting clinical, genetic, and protein data from 3,000 participants. By gathering detailed information, researchers hope to better understand the disease and identify people who may be eligible for future clinical trials. The study is observational and does not test any new treatment.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Hospitals within the DM1 network

    RECRUITING

    Multiple Locations, Andalusia, Spain

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Hospitals within the DM1 network

    RECRUITING

    Multiple Locations, Basque Country, Spain

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Hospitals within the DM1 network

    RECRUITING

    Multiple Locations, Canary Islands, Spain

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Hospitals within the DM1 network

    RECRUITING

    Multiple Locations, Cantabria, Spain

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Hospitals within the DM1 network

    RECRUITING

    Multiple Locations, Castilla-La Macha, Spain

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Hospitals within the DM1 network

    RECRUITING

    Multiple Locations, Catalonia, Spain

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Hospitals within the DM1 network

    RECRUITING

    Multiple Locations, Madrid, Spain

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • Hospitals within the DM1 network

    RECRUITING

    Multiple Locations, Valencia, Spain

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

Conditions

Explore the condition pages connected to this study.