MYOTONIC DYSTROPHY TYPE 1
Clinical trials for MYOTONIC DYSTROPHY TYPE 1 explained in plain language.
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Can music and movement ease symptoms of a rare muscle disease in kids?
Symptom relief Recruiting nowThis study is testing whether weekly music and movement sessions are practical and helpful for children with congenital myotonic dystrophy type 1 (DM1), a rare genetic disorder that affects muscles, the brain, and the heart. Researchers will see if these sessions can improve phys…
Matched conditions: MYOTONIC DYSTROPHY TYPE 1
Phase: NA • Sponsor: Hanns Lochmuller • Aim: Symptom relief
Last updated Mar 31, 2026 12:11 UTC
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Massive spanish study launches to map a rare muscle disease
Knowledge-focused Recruiting nowThis study aims to create a detailed national picture of Myotonic Dystrophy Type 1 (DM1) in Spain. It will enroll up to 3,000 people with DM1 to collect their health information over time in a central registry. The goal is to better understand how the disease progresses and to id…
Matched conditions: MYOTONIC DYSTROPHY TYPE 1
Sponsor: Fundació Institut Germans Trias i Pujol • Aim: Knowledge-focused
Last updated Apr 02, 2026 14:57 UTC
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National registry opens doors for rare muscle disease research
Knowledge-focused Recruiting nowThis study creates a national registry to connect people with myotonic dystrophy or facioscapulohumeral muscular dystrophy (FSHD) with researchers. It aims to better understand these rare muscle diseases by tracking symptoms over time and helping match interested participants to …
Matched conditions: MYOTONIC DYSTROPHY TYPE 1
Sponsor: University of Rochester • Aim: Knowledge-focused
Last updated Mar 30, 2026 14:34 UTC
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Scientists hunt for hidden clues in brain fluid to understand muscle disease
Knowledge-focused Recruiting nowThis study aims to understand myotonic dystrophy better by looking for early signs in the fluid surrounding the brain and spinal cord. Researchers will collect this fluid and measure brain activity in 88 adults with and without the condition. The goal is to find biological marker…
Matched conditions: MYOTONIC DYSTROPHY TYPE 1
Sponsor: Massachusetts General Hospital • Aim: Knowledge-focused
Last updated Mar 23, 2026 15:18 UTC
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Brain scans aim to unlock mystery of cognitive problems in muscle disease
Knowledge-focused Recruiting nowThis study aims to understand how myotonic dystrophy (types 1 and 2) affects the brain and thinking skills. Researchers will compare brain scans, thinking tests, and blood samples from 100 adults with the disease to healthy people. The goal is to gather information that can help …
Matched conditions: MYOTONIC DYSTROPHY TYPE 1
Sponsor: Wake Forest University Health Sciences • Aim: Knowledge-focused
Last updated Mar 20, 2026 14:47 UTC