MYOTONIC DYSTROPHY TYPE 1
Clinical trials for MYOTONIC DYSTROPHY TYPE 1 explained in plain language.
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Music sessions tested as therapy for rare muscle disease
Symptom relief Recruiting nowThis study explores whether weekly music and movement classes are practical and enjoyable for children aged 6–18 with myotonic dystrophy type 1 (DM1). Over 10 weeks, 13 participants will attend 45-minute sessions, wear activity trackers, and provide biological samples. The goal i…
Matched conditions: MYOTONIC DYSTROPHY TYPE 1
Phase: NA • Sponsor: Hanns Lochmuller • Aim: Symptom relief
Last updated May 26, 2026 04:37 UTC
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Brain scans aim to unlock mysteries of muscle disease
Knowledge-focused Recruiting nowThis study looks at how myotonic dystrophy type 2 (DM2) affects the brain. Many people with DM2 have trouble thinking clearly, but we don't know much about why. Researchers will use MRI scans, thinking and movement tests, and blood samples to compare people with DM2, DM1, and hea…
Matched conditions: MYOTONIC DYSTROPHY TYPE 1
Sponsor: Wake Forest University Health Sciences • Aim: Knowledge-focused
Last updated May 26, 2026 04:32 UTC
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Join the fight: new registry links muscle disease patients with scientists
Knowledge-focused Recruiting nowThis study creates a national registry for people with myotonic dystrophy (DM) or facioscapulohumeral muscular dystrophy (FSHD) and their family members. The goal is to connect patients with researchers to speed up understanding of these inherited muscle-weakening diseases. Parti…
Matched conditions: MYOTONIC DYSTROPHY TYPE 1
Sponsor: University of Rochester • Aim: Knowledge-focused
Last updated May 22, 2026 13:51 UTC
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Spain launches massive DM1 registry to unlock disease secrets
Knowledge-focused Recruiting nowThis study aims to create a comprehensive national registry for Myotonic Dystrophy Type 1 (DM1) in Spain, collecting clinical, genetic, and protein data from 3,000 participants. By gathering detailed information, researchers hope to better understand the disease and identify peop…
Matched conditions: MYOTONIC DYSTROPHY TYPE 1
Sponsor: Fundació Institut Germans Trias i Pujol • Aim: Knowledge-focused
Last updated May 20, 2026 11:55 UTC
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Spinal fluid holds clues to rare muscle disease
Knowledge-focused Recruiting nowThis study looks at spinal fluid and brain activity in people with myotonic dystrophy type 1 to find early signs of the disease. Researchers will compare fluid samples from affected and unaffected volunteers. No treatment is given; the goal is to better understand the condition a…
Matched conditions: MYOTONIC DYSTROPHY TYPE 1
Sponsor: Massachusetts General Hospital • Aim: Knowledge-focused
Last updated May 12, 2026 13:41 UTC