Researchers launch major database study to unlock secrets of rare skin disease

NCT ID NCT02945345

Recruiting now Knowledge-focused Sponsor: University of Pennsylvania Source: ClinicalTrials.gov ↗

First seen Apr 01, 2026 · Last updated May 25, 2026 · Updated 3 times

Summary

This study gathers information from 300 adults with dermatomyositis to learn more about the disease, how it changes over time, and how treatments affect symptoms and quality of life. Participants complete surveys and skin assessments, but no new treatments are tested. The goal is to improve future care by better understanding this challenging condition.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

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Study contacts

Contact

Phone: •••-•••-•••• Email: •••••@•••••
Contact

Phone: •••-•••-•••• Email: •••••@•••••

Locations

Hospital of the University of Pennsylvania
RECRUITING

Philadelphia, Pennsylvania, 19104, United States

Contact Phone: •••-•••-•••• Email: •••••@•••••

Contact Phone: •••-•••-•••• Email: •••••@•••••

Contact

Conditions

Explore the condition pages connected to this study.

DERMATOMYOSITIS