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Swallowing struggles in dementia add to caregiver burden, new study finds

NCT ID NCT06471660

Knowledge-focused Sponsor: University of Oregon Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study surveyed 219 family caregivers of people with dementia to explore how swallowing problems (dysphagia) affect their burden and needs. Caregivers completed a one-time online questionnaire about their experiences, stress, and knowledge. The goal is to better understand and support caregivers facing these challenges.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

What this could lead to
If successful, this research could help design better support and training for caregivers managing swallowing difficulties in dementia.
What could go wrong
This is a completed survey study, not a treatment trial. Results may not apply to all caregivers or dementia types.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Participants

219 people

The number who actually took part.

Started

Nov 2023

Finished

Jul 2025

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Who is studied

Unpaid, adults living with and caring for a family member with dementia with or without swallowing difficulties.

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Accepted

You do not need to have the condition being studied to take part.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Be a caregiver for a family member (or chosen family member) with dementia * Have been caregiving for at least 2 months * Live at home with the care recipient * Not be paid for the care provided * Be over the age of 18 * Live in the US Exclusion Criteria: * Not be a caregiver for a family member (or chosen family member) with dementia * Have been caregiving for less than 2 months * Not live at home with the care recipient * Be paid for the care provided * Be under the age of 18 * Live outside in the US

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Conditions

The condition(s) this trial relates to.

Alzheimer disease Deglutition Disorders dementia follicular lymphoma frontotemporal dementia Lewy body dementia Lewy Body Disease Mixed Dementias Pick disease semantic dementia vascular dementia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Dementia Dementia alzheimers Dementia frontal Dementia moderate Dementia severe Dementia with lewy bodies Dementia, frontotemporal Dementia, mild Dementia, mixed Dementia, vascular Dysphagia Parkinson disease dementia

Contacts and locations

Locations

  • Remote study offered by the University of Oregon

    Eugene, Oregon, 97403, United States

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