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New program aims to ease the burden on dementia caregivers at home

NCT ID NCT05849259

Symptom relief Sponsor: Massachusetts General Hospital Source: ClinicalTrials.gov ↗

What the study statuses mean

This study's is highlighted.

Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Jun 25, 2026 · Last updated Jun 27, 2026 · Updated 1 time

Summary

This study tested a new program called 'Dementia Care Quality at Home' in two home-based primary care clinics. The program trained clinic staff to assess the needs of people with dementia and their caregivers, provide educational materials, and hold team meetings to address challenges. Researchers wanted to see if the program was practical and acceptable for clinics to use. The study involved 50 participants, including caregivers and clinic staff, and focused on whether the program could be easily implemented in real-world settings.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
Dementia Care Quality at Home program (training and tools for clinic staff)
What this could lead to
If successful, this program could provide a practical way for home-care clinics to better support both dementia patients and their caregivers, reducing caregiver stress and improving patient well-being.
What could go wrong
This is a very small, early feasibility study with only 50 participants, so results may not apply broadly. The program may be too complex for some clinics to adopt, or may not lead to meaningful improvements in outcomes.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Not a phased trial

Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.

Participants

50 people

The number who actually took part.

Started

Oct 2023

Finished

Dec 2024

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Accepted

You do not need to have the condition being studied to take part.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: Caregiver participants will: * be adults (18 years or older) * have English fluency and literacy * live in the United States * live with and care for an individual with Alzheimer's Disease and Alzheimer's Disease Related Dementias (ADRD) * anticipate providing care for the next 6 months * provide an average 4 hours of supervision or direct assistance per day for the care recipient and * have been identified by the practice as experiencing caregiver stress. Staff participants will: * be 18 years or older * have English fluency and literacy and live in the United States and * be part of a HBPC primary care program or closely connected to the practice. Exclusion Criteria: * Participants under the age 18. * Participants who have no English fluency and literacy and do not live in the United States. * For caregiver participants, not caring for and living with a patient that is part of a HBPC primary care program or closely connected to the practice.

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Conditions

The condition(s) this trial relates to.

Alzheimer disease Caregiver Burden dementia

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Caregiver stress Dementia Quality of life

Contacts and locations

Locations

  • Queens Medical Center

    Honolulu, Hawaii, 96813, United States

  • Virginia Commonwealth University

    Richmond, Virginia, 23219, United States

More trials for these conditions

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