Which method gets patients more involved in research? new study aims to find out.
NCT ID NCT06838689
First seen Jun 27, 2026 · Last updated Jun 27, 2026
Summary
This study compares two ways of involving patients, caregivers, clinicians, and community members in research. One method is more consultative, the other more collaborative. Researchers want to see which approach builds more trust and engagement, especially among groups that are often left out of research. About 136 participants will help with real studies on pediatric mental health, cancer screening, and serious illness.
What this could mean
Our plain-language read of the trial. This is informational only, not medical advice or a prediction.
- What this could lead to
- If this works, it could show researchers the best way to involve patients and the public in designing and sharing research, making studies more relevant and trustworthy.
- What could go wrong
- This is an early study comparing two approaches, so it may not find a clear winner. Results might not apply to all types of research or communities.
This is an AI summary of the original study and may miss details. Read our disclaimer.
Study facts
What this study's own registry entry says, in plain language.
- Phase
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Not a phased trial
Phase numbers describe drug development. The registry uses this when they do not apply, as it does for trials of devices, procedures or behaviour changes, and for observational studies.
- Participants
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About 136 people
The number the study aims to enrol. It can still change while the study runs.
- Started
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Sep 2025
- Expected to finish
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Oct 2027
An estimate. End dates often move.
- Lead sponsor
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Other sponsor
The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.
Who can take part
This study's own entry requirements. Only the study team can say for certain whether you qualify.
- Ages
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18 years and older
- Sex
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Anyone
- Healthy volunteers
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Not accepted
This study is not open to healthy volunteers. The entry requirements below say who it is open to.
Show the full entry requirements Hide the full entry requirements
Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.
Inclusion criteria \& Exclusion criteria across three sub-specialties: Pediatric mental health Inclusion: * Adults aged ≥18 years * Can communicate in English * Able to take part in research activities via a computer or a smartphone * Patients, care partners, clinicians, other healthcare professionals, teachers and school staff, health policy experts, and community members * Has lived experience or professional expertise relating to pediatric mental health Exclusion: * Children \<18 years * Cannot communicate in English * Adults unable to provide verbal consent * Prisoners * Unable to take part in research activities via a computer or a smartphone Generalized cancer screening Inclusion: * Adults aged ≥21 years * Can communicate in English * Able to take part in research activities via a computer or a smartphone * Patients, care partners, clinicians, other healthcare professionals, health policy experts, and community members * Is eligible for population-based cancer screening tests (breast, prostate, cervical, colorectal cancer), or has lived experience or professional expertise relating to generalized cancer screening Exclusion: * Children \<18 years * Cannot communicate in English * Adults unable to provide verbal consent * Prisoners * Unable to take part in research activities via a computer or a smartphone Serious illness experience Inclusion: * Adults aged ≥18 years * Can communicate in English * Able to take part in research activities via a computer or a smartphone * Patients, care partners, clinicians, other healthcare professionals, health policy experts, and community members * Has lived experience or professional expertise relating to serious illness (defined as "a health condition that carries a high risk of mortality and either negatively impacts a person's daily functioning or quality of life or excessively strains his or her caregivers." Exclusion: * Children \<18 years * Cannot communicate in English * Adults unable to provide verbal consent * Prisoners * Unable to take part in research activities via a computer or a smartphone Note: We will not specifically exclude pregnant women, so they may be included incidentally.
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As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
How to take part
Only the study team decides who joins. These are the ways to reach them.
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The places running it
2 sites. The list below names each one and where it is.
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The official record
ClinicalTrials.gov lists the study team's own contact details, including names and phone numbers. We don't republish those.
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A doctor treating you
A doctor who knows your case can contact a study site on your behalf, and can tell you whether this study is worth pursuing at all.
Contacts and locations
Locations
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Dartmouth-Hitchcock Medical Center
RECRUITINGLebanon, New Hampshire, 03756, United States
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Geisel School of Medicine at Dartmouth
RECRUITINGHanover, New Hampshire, 03755, United States
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