What is it like to have a parent with cystic fibrosis? study seeks answers
NCT ID NCT04702386
First seen Nov 20, 2025 · Last updated Apr 30, 2026 · Updated 17 times
Summary
This study talked to 27 children (ages 6 and up) who have a parent with cystic fibrosis, a serious lung disease. Researchers held interviews and small group chats led by a psychologist to learn about the children's feelings, worries, and needs. The goal is to use this information to create better medical and social support for these families.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Cochin Hospital
Paris, 75014, France
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Foch Hospital
Suresnes, 92150, France
Conditions
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