What is it like when your parent has cystic fibrosis? a new study asks kids directly
NCT ID NCT04702386
First seen Nov 20, 2025 · Last updated Jun 16, 2026 · Updated 29 times
Summary
This study talked to 27 children (ages 6 and up) who have a parent with cystic fibrosis. Through interviews and small group discussions led by a psychologist, researchers aimed to understand their feelings, worries, and needs. The goal is to use this information to create better support programs for these families.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Cochin Hospital
Paris, 75014, France
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Foch Hospital
Suresnes, 92150, France
Conditions
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